| Subject: |
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Re: Re: Re: Re: your disease |
| Name: |
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Angel H. |
| Date Posted: |
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Sep 28, 07 - 9:19 PM |
| Email: |
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aahwings@aol.com |
| Instant Messenger: |
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 aahwings |
| Website: |
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http://www.hs-usa.org |
| Message: |
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Hi Stephanie,
My name is Angel and I now live in Colorado just moved here from Florida. I have been in remission for over a year...or I should say little breakouts. Since I have moved here I have had very little breakouts and if I do they are gone in a day. I have suffered a shorter time with HS. I didn't have any symptoms until I was 39 and I am now 47.
Wow, has time past but is slowed way down when the HS was so bad with me. My health took a serious dive and I was at deaths door to many times with the HS fever and no energy to fight the HS. I am sure you know that the fever and infections can you leave you weak and lifeless for weeks, months and sometimes years.
I wanted you to know that there are so many of us that suffer with Hidradenitis. You by far are alone even thought those longs days and nights with pain makes you feel that way. We have a lot of online support groups. There are so many people that are in our shoes. I got tell you that HS isn't for people that are over weight. Doctors make that the wrong diagnose. I weighed 147 pounds at 5'11" when this stuff attack me.
My weight went up when I got sicker and sicker.
Have you visited the main website for HS suffers? It's www.hs-usa.org.
Below is a list of the online support groups that I manage. There are support groups for many states. I became very active in the fight to find a cure. I have been volunteering for years with them and devoted a lot of life time to helping others.
The main thing is not to get overwhelmed with all the reading...it's emotional and scary. I can tell you after I could finally pronounce hidradenitis and learned about others suffering with it and researched the disease I felt weak and ****ed. Then I released after a year ago so that so many others have felt this way. Some that couldn't see light anywhere in their lives because of this disease.
We have to have a cause to live and we have learned to be stronger and put up with more than people that don't have such a disease.
Tell your hubby he gets brown points. True love is beyond the form it's inside and unconditional. Yeah for you!
Now if you want to join the online links for support please do. There are a lot of helpful and knowledgeable and people and new friendships here. We have our own community for HS suffers and family members. Some of the best people you can eve meet in person or online.
You keep your head up and keep the faith that there will be a cure. You do have help and people that know what you are going through. It's always shocking to see the photos and read the horror stories of others. Just know that you are not alone. I am here we all are here for you.
Gentle Hugs and prayers for a peaceful sleep and better days.
Sincerely, Angel Heiskell
Group owner and support leader for HSFlorida@yahoogroups.com HSinTXOKARLA@yahoogroups.com , hs_relationships@yahoogroups.com
and hs_leaders-owner@yahoogroups.com
If you or someone you know suffers from this life altering and extremely painful disease please contact me at aahwings@aol.com or you can find support
groups and information here: http://www.hs-usa.org
The information in this message (and the documents attached to it, if any) is confidential and may be legally privileged. It is intended solely for the addressee. Access to this message by anyone else is unauthorized. If you are not the intended recipient, any disclosure, copying, distribution or any action taken, or omitted to be taken in reliance on it is prohibited and may be unlawful. If you have received this message in error, please delete all electronic copies of this message (and the documents attached to it, if any), destroy any hard copies you may have created and notify me immediately by replying to this email. Thank you |
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